At Salford Dementia Champions Group, a fantastic, energetic forum made of up of frontline health and care workers, clinicians, third sector organisations, as well as carers and most importantly, people living with Dementia – we heard many of the issues people experience day to day – and many of these link to the lack of joined up services and sharing of information between them.
One carer’s experience particularly stands out. Fit and well, full of life, and in her 80’s – she had cared for her husband with Dementia for the last 20 years. He sadly passed away 6 months previously and the experience she had during this time was, I’m sure, not unique. The single biggest issue she had was purely the frustration she had felt in having to repeat her husband’s story over and over (and over) again. She could not understand why the many different services they had to deal with, didn’t coordinate their care and didn’t know what each other was doing in relation to her husband. And she’s right. Why should the database of information on the health and care needs of her husband be held in her head and the responsibility for this lying with her and not the services they’re accessing? And this is what the technology that GM is developing could help to address.